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Home » What's New » Sjogren’s Awareness Month – Understanding The Invisible Disease 

Sjogren’s Awareness Month – Understanding The Invisible Disease 

In honor of Sjogren’s Awareness month, eye care providers are helping to spread the word to increase awareness about this hard-to-diagnose disease.

Sjogren’s is a systemic autoimmune disorder that can affect the whole body. One of the primary symptoms is excessive dryness particularly in the eyes and mouth. Other serious symptoms include chronic fatigue and pain, specifically in the joints, as well as major organ dysfunction. The syndrome also increases chances of neuropathies and lymphomas. 

The severity of the disease varies greatly, ranging from mild discomfort to debilitating symptoms that can seriously impair normal functioning in everyday life. Early diagnosis and treatment can prevent serious complications and improve quality of life. There is currently no cure for Sjogren’s, yet there are treatments for many of the individual symptoms. On average patients are prescribed upwards of 8 medications to treat the wide range of symptoms. 

Women are nine times more likely to develop Sjogren’s than men and diagnosis usually occurs around the age of 40. Unfortunately, because the symptoms vary from person to person, and the disease often occurs in the presence of or mimics other diseases (such as lupus, rheumatoid arthritis, menopause, allergies or multiple sclerosis) the disease is often misdiagnosed or overlooked. Further, because the symptoms can affect different parts of the body system such as the teeth, eyes or musculoskeletal system, various health professionals are sought to diagnose or treat specific symptoms (such as rheumatologists, dentists or eye doctors) while the big picture is often missed. On average it takes almost three years to obtain a Sjogren’s diagnosis once symptoms are noticed.  

Since dry eye is one of the most common early symptoms of the disease, there has been an effort to educate eye care providers to recognize and to be aware to look for symptoms of the disease. Patients also need to be aware and proactive about speaking to their health care providers about potential diagnosis and treatment. Knowing the risk factors and symptoms can be imperative to a faster diagnosis. 

Your eye doctor may be able to detect and diagnose Sjogren's syndrome from dry eye symptoms as well as other diagnostic tests and review of symptoms. With this diagnosis the treatment will be different from typical dry eye disease. Since it is an autoimmune disease, lubricating eye drops may provide temporary relief but will not address the source of the problem. Your doctor may prescribe newer cyclosporine drops as well to treat the inflammatory response. If you have dry eyes and typical treatments aren’t working, it may be worthwhile to ask about Sjogren’s. 

Sjogren’s patients often feel misunderstood because most of the debilitating symptoms are not visible to others and the disease is often not recognized largely due to a lack of awareness. By increasing both public and professional awareness, the goal is to reduce diagnosis time and to advance research on the cure for this disorder.

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To our dear patients:

We are happy to announce we have reopened and we are making special arrangements to be mindful of social distancing and your personal comfort. We are taking extra precautionary action for your protection and safety. We carefully sanitize all surfaces, including equipment, frames and supplies.

Additionally, when coming in for an examination, here are a few things that you can expect:

The office door will remain locked throughout office hours in order to control the patient flow and establish social distancing in the office. Patients are screened upon entering for high-risk history, symptoms and their temperatures taken.Patients (in addition to all staff) are required to wear a mask or face covering for the entirety of the visit.Patients are required to come inside alone (unless they are a minor in which case only one guardian may accompany them).

Patients may still order glasses or contacts for curbside pickup or have them shipped directly.

We thank you for your patience and look forward to serving you at our office again soon!